During this conversation, to determine if the Get Psorted Get Connected peer support program is right for you, the nurse will discuss your background, your reasons for getting involved and to complete a short questionnaire.
Contacting You to introduce you to the Program, obtain a brief medical history and information about Your journey with Psoriasis and Your reasons for wanting to engage with the Program ("Your Story"), and to otherwise administer the Program;
Communicating with Your nominated doctor, to confirm or obtain information regarding Your condition to assist in providing the Program and to provide them with information regarding Your enrolment, Your receipt of Program services and Your progress in the Program;
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Providing general information regarding Your Story to a peer supporter engaged by the Program Manager ("Peer Supporter"), for the purpose of that Peer Supporter telephoning You (at a convenient time) to provide non-medical support and information and to share their own Psoriasis journey with You.
4. You consent to the Peer Supporter calling You on the phone number provided by You in this form, for the purposes of discussing Your Story with you and sharing their own Psoriasis journey as well as providing general peer support and information regarding further resources you can access, (each call from a Peer Supporter is a "Support Call").
6. Information received from the Program Manager, Support Nurse and Peer Supporter must not be relied on as medical advice. If you have any concerns about your medication, disease or general health, you should always contact your doctor.
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7. As set out in clause 3 above, your doctor will be informed of your enrolment and participation in the Program and if Your doctor has concerns, the Program Manager may not be able to offer the Program services to You. The Support Nurse will discuss with you what other support may be available.
8. You acknowledge and agree that the Program Manager (including the Support Nurse) is legally obliged to pass on details of any adverse events that it becomes aware of, to Janssen. You understand that Janssen or an authorised third party may contact Your doctor for the purpose of an adverse event follow up.
9. The Program is funded by Janssen, and neither Your doctor nor any healthcare professional engaged in the management of Your health is provided with payment of any kind for using the Program or suggesting that You enrol in the Program;
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10. Subject to clause 11, the Program will be available until 31 October 2018 unless extended by Janssen, at its sole discretion.
11. Janssen reserves the right to cease funding the Program (or any part of the Program) and to terminate or vary the Program at any time. The Program Manager will seek to contact You to notify You of the cessation of the Program.
12. You may opt out of this Program at any time by calling 1800 669 776, emailing [email protected] or writing to Janssen Get Psorted Get Connected, PO Box 202, Hampton VIC 3188. No stamp is required. If You have any questions, complaints or claims in relation to the Program You should contact Aesir Health on 1800 669 776.
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In order to register for this Program I need to provide Aesir with my personal information (which includes information regarding my health and medical history).
I consent to my personal information being collected and used by Aesir (and any contracted service provider in its place) for the purpose of arranging and managing the Program and to provide me with services and resources relating to my condition and ongoing health needs.
I understand that Aesir shall collect, use, disclose and store my personal information in accordance with its privacy policy and of Australian privacy law. I understand that Aesir will provide my personal information to the Peer Supporter providing the Program services, to my nominated doctor and to any third party contracted providers engaged by Aesir from time to time to assist in carrying out the Program.
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I understand that unless I ask Janssen or Aesir not to, Aesir may contact me to obtain feedback on my experience of the Program. Aesir will provide certain de-identified aggregate data to Janssen in respect of patient feedback and the Program for the purposes of analysing trends, drive Program improvement, conducting research and publication of such findings at health care professional educational symposium. I understand that any such publication will not identify me individually.
If you would like to know more about Janssen's or Aesir's privacy policies, or if you would like to access or update your personal information, please contact Aesir on 1800 669 776.
The Get Psorted Get Connected peer support program Is sponsored by Janssen-Cilag Pty Ltd, ABN 47 000 129 975, 1-5 Khartoum Road, Macquarie Park NSW 2113 Australia. Ph: 1800 226 334 Date of preparation: July 2018 JANS2338/EMBC CP-62467
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Below shows a description of some of the most common forms of psoriasis. A qualified healthcare professional will be able to help you diagnose which type(s) of psoriasis is impacting you and the differences of each.
This is the most common form of psoriasis and affects 9 in 10 people who live with psoriatic conditions. Plaque psoriasis is defined by dry, red lesions (plaques) covered in silver scales. The plaques most commonly occur on the elbows, knees, scalp, and lower back. They can be itchy or sore – or both.
This type is mostly found on the scalp and is characterised by red patches of skin covered in thick, silvery-white scales. While it can be extremely itchy, some people experience no discomfort. In extreme cases of scalp psoriasis, some people can experience temporary hair loss.
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This form of psoriasis most often affects younger people, primarily appearing on the chest, arms, and legs. It causes small, drop-shaped lesions over the body, covered in fine scales.
This form of psoriasis is characterised by tiny dents, discoloration and abnormal growth of the nail and its bed. This leads to the nails separating from the nail bed or crumbing of the nails.
This appears on the palms of the hands or soles of the feet. It can also be characterised by scaling, redness, or pustules (small blisters or pimples on the skin containing pus). This is also a less common form of psoriasis compared to others.
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Children diagnosed with psoriasis can present with similar symptoms to adults. Early diagnosis and management is very important to children with psoriasis as it can have an impact on other physical conditions such as obesity and high blood pressure, and importantly can have significant impacts on their mental health and wellbeing.
Some people who have psoriasis can also develop psoriatic arthritis. It can take about 5 - 12 years to develop after having psoriasis. It can start with swollen joints and pain in large and small joints. Some people may also experience stiff joints when they wake up.
11. Bronckers I. M.G G. J. et al (2015), Psoriasis in Children and Adolescents: Diagnosis, Management and Comorbidities. Paediatric Drugs 17(5):373- 84. Accessed here: https://pubmed.ncbi.nlm.nih.gov/26072040/.
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12. Salman A et al. (2018). Impact of Psoriasis in the quality of life of children, adolescents and their families: a cross-sectional study. An Bras Dermatol. Nov-Dec: 93(6):819-823. Last accessed November 2021.Pitting is the commonest symptom of nail psoriasis. Pits usually affect the fingernails more commonly than the toenails. They are superficial depressions in the nail plate that indicate abnormalities in the proximal nail matrix (where the nail grows from under the cuticle). Psoriasis affecting the proximal nail matrix disrupts the keratinization of its stratum corneum by parakeratotic cells. Keratinization is the process by which epithelial cells become filled with keratin protein filaments, die, and form tough, resistant structures such as the skin, nails and hair. Pitting results when the keratinization process has been disrupted and the structure of the nail has been compromised allowing some of the cells, as the nail grows and becomes exposed, to be sloughed off forming scattered and coarse pits. Pitting may be arranged in transverse (side to side) or longitudinal rows or it may be randomly scattered. They may be shallow or large to the point of leaving a punched out hole in the nail plate. This is known as elkonyxis.
Transverse grooves (also known as Beau lines) are formed in the same way as pits. This occurs when the psoriatic lesion affects a wider area of the nail matrix.
An extensive involvement of the entire nail matrix affecting the toenails more frequently than the fingernails. It results from the lifting of the nail plate off the nail bed due to the build-up of cells that have not undergone desquamation (shedding). The resulting accumulated tissue is friable (soft and crumbling) which is susceptible to infection by fungal dermatophytes e.g. Candida albicans (C. albicans) and pseudomonas aeruginosa, leading to either yellow/green discoloration.
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Leukonychia consists of areas of white nail plate due circumscribedfocusof trappedparakeratoticcells within thebody of the nail plate. Punctate Leukonychia is characterized by white spots 1-3 mm in diameter occurring singly or in groups and almost exclusively appear on the finger nails.
Psoriatic paronychia usually develops when the periungual skin (around the cuticle) is affected by psoriasis, but it is also commonly seen in psoriatic arthritis with nail
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